Lightning Round Presenters

A Sage Assembly tradition is to turn over the stage to Assembly participants to share their stories in a rapid learning format. Learn about this year’s presenters and their topics below.  These rapid fire talks will be held during the Thursday evening Opening Reception. 

Rhoda Au
Boston University

Inherent Data Sharing Challenges for Longstanding Legacy Studies

Rhoda Au, Ph.D. is Professor of Anatomy & Neurobiology, Neurology and Epidemiology at Boston University Schools of Medicine and Public Health.  She is also Director of Neuropsychology at the Framingham Heart Study

Bruce Caron 
Earth Science Information Partners

Nourishing the Passions of Scientists by Building Vibrant Collectives,  Not Communities of Practice

Bruce is an online science community architect, a cultural anthropologist, and a theorist delving into the cultural work of open science. His PhD was about the cultural work of street festivals in Japan. He writes alternative-present novels (today, we all could use an alternative present). 

Heather Cole-Lewis 
Johnson & Johnson

Heather Cole-Lewis, MPH, PhD, is the Director of Behavior Science at Johnson & Johnson, where she works at the intersection of health behavior change and data science to build digital behavior change interventions that amplify health and wellbeing outcomes. Currently, she is most interested in exploring ways to maximize impact of digital health interventions using rapid iteration and unique combinations of methodologies from social science, human computer interaction, and data science. 

Andrea Coravos
Elektra Labs

Custodial Responsibilities in the Connected Age: Digital Specimens and Social Contracts

Andy Coravos is the CEO/co-founder of Elektra Labs, an open-source digital medicine project. Previously, she was a software engineer at Instacart and also Akili Interactive. Andy is a digital rights advocate and has published pieces for NeuroTechX, Huffington Post and on her blog.

Keith Elliston
TransMart Foundation

Keith O. Elliston, Ph.D., is the president and CEO of the tranSMART Foundation, a non-profit organization providing a global, open-source knowledge management platform for scientists to share pre-competitive translational research data. He was a key member of the Foundation’s founding team, initially serving as the chief scientist and head of business development.

Amel Ghoulia
H3ABionet, Mozilla Fellow

Amel is currently a bioinformatician at Institut Pasteur de Tunis, where she works on the frame of the pan-African bioinformatics network supporting researchers and their projects while developing bioinformatics capacity throughout Africa. She is a Mozilla Science fellow and is a regional ambassador for the Technovation program: the global tech entrepreneurship for young girls.

Bastian Greshake Tzovaras
Open Humans

Demystifying Algorithms by Doing

Bastian Greshake Tzovaras is an avid fan of all things open and participatory research with a background in bioinformatics. In 2011 he co-founded openSNP, which since then has grown to be the world’s largest open personal genomics repository. In addition, he’s the Director of Research for Open Humans – a data sharing ecosystem that empowers individuals to make decisions on how and when to share their personal data.

Melissa Haendel
Oregon Health Sciences University

Collaborating With Your Doc On Your (Rare Disease) Diagnosis

Melissa’s work focuses on data interoperability at the intersection of basic research, patient generated data, and clinical research. She is involved in a number of open science efforts such as the Biden Blue Ribbon Panel on Data Sharing, the Center for Data to Health, the Monarch Initiative, and data licensing initiatives such as the ReusableData Project. 

Janet Hall
American Heart Association

The Magical Mystery Tour

Janet started her career as an intelligence analyst, but joined the early digital revolution  when she ran the product group that launched AOL Instant Messenger.  For the past 15 years, she has held various product and marketing roles in start up organizations, including the Institute for Precision Cardiovascular Medicine at the American Heart Association.

 Kristi Holmes
Northwestern University, Feinberg School of Medicine 

Kristi is the Director of Galter Health Sciences Library and a faculty member in the Department of Preventive Medicine at Northwestern University. Her research is focused on enhancing discovery across basic science, clinical, and community-based research through information standards and open science. Ultimately, her group seeks to develop new methods for tracking and understanding translational impact. Kristi serves as a co-director of the new CTSA National Center for Data to Health (CD2H) and she is excited about new roles and opportunities for modern biomedical research libraries in an increasingly informatics and data-driven environment.

Dave King
Exaptive

Dave is Founder and CEO of Exaptive. He is an engineer and software architect, whose enthusiasms lie in using data and code to solve problems, communicate ideas, and facilitate innovation, whatever the subject matter. He has been involved in high-tech entrepreneurship since starting at MIT in 1993 and has designed and developed award-winning enterprise software for leveraging data. Dave speaks internationally about data science, data-driven software, modular design, and how they facilitate aha moments. He is also a published author and photographer. 

Pedja Klasnja
Kaiser Permanente Washington Health Research Institute 

Predrag “Pedja” Klasnja, PhD, studies ways in which mobile-health (mHealth) interventions can help individuals develop healthy habits and sustain them over the long-term. To achieve these goals, Dr. Klasnja develops and evaluates mHealth tools intended to keep people engaged with their health goals, discover opportunities for healthy behavior they can do in their current situation, and reflect on their behavior patterns to identify ways to improve their health without disrupting relationships and routines that are important to them.

Clifford Lynch 
Coalition for Networked Information

Documenting Social Media and Other Algorithmic and Personalizing Systems

Cliff Lynch is the Director of the Coalition for Networked Information and adjunct Professor at the School of Information at the University of California, Berkeley.

Gaëll Mainguy
Centre de Recherches Interdisciplinaires 

Gaëll Mainguy, PhD, is the Director of Development and International Relations at CRI (Center for Interdisciplinary Research Paris, France). He has developed projects successively in neuroscience, open and participatory science, sustainability and education for non-profit, academic and private organizations. He is a pupil of Ecole Normale Supérieure (Paris) and has a PhD in neurobiology from the Pierre and Marie Curie University.

Tetsuyuki Maruyama
Dementia Discovery Fund

Tetsuyuki Maruyama is Chief Scientific Officer at The Dementia Discovery Fund (DDF), an innovative venture fund managed by SV Health Investors and dedicated to creating novel and innovative treatments for dementia. He is also on the Sage Bionetworks Board of Directors.

Arikia Millikan
Journalist

Illuminating Biometric Data Shadows

Arikia Millikan is a journalist and online media entrepreneur from New York City. She moved to Berlin in July of 2017 and worked as editorial lead at Tactical Tech before founding CTRL+X, a research and development agency exploring alternative technological platforms and business models for online media. In 2013 she founded LadyBits, a publishing collective for tech-savvy women. Prior to that she was an editor at WIRED and lead researcher for Nate Silver during production of the #1 best-selling book, The Signal and the Noise. 

Matthew Trunnell
Fred Hutchinson Cancer Research Center

Institutional Data Commons

Matthew started his professional life as an oceanographer working mostly with computer-simulated seas. Following a meandering path that might be roughly characterized as a career in scientific computing, he found his way into genomics and spent an unspecified number of years in commercial and academic research environments. Matthew now serves as the Chief Information Officer at the Fred Hutchinson Cancer Research Center and leads a new effort called the Hutch Data Commonwealth.

Dylan Wilbanks 
Hêtre

Dylan is principal of Hêtre, a user experience design strategy consultancy based in Seattle. His work has taken him through the data science of energy efficiency programs, the data visualization of technology business management, and the information architecture of small agency websites and large enterprise software solutions. He has a degree in environmental studies, which is as irrelevant a degree as any designer could have.

 

Taylor Cusher 
FasterCures, a center of the Milken Institute

What can patients/caregivers do to harness the power of their data?

Taylor Cusher is an Associate Director at FasterCures, a center of the Milken Institute, where she supports the organization’s efforts related to patient engagement. Leading projects related to patients’ access to health data, she believes in the power of patient perspectives and experience to shape and influence the discovery, development, regulation, and delivery of medical products.